Kait: I forgot to write after Jake's post-op appointment with his surgeon! The surgeon's assistant removed the very thick bandage from Jake's leg and we were pleasantly surprised by how it looked. I was expecting a gruesome sight, but it actually looks pretty clean.
Jake sat up and we watched his little brain process what he was seeing. His face changed from surprise to confusion. He asked "why is there a crack in my leg?" The worst part of the appointment was removing the stitches. Jake was almost hyperventilating because he was crying so hard and had red splotches all over his face. Randy had to hold him down so that he wouldn't kick. Jake chose green (of course) for his cast color and we had to move him to a sitting position with his legs dangling to get the cast set properly. This was also uncomfortable for him.
Once the cast was dry we waited for the surgeon to come talk to us. We had questions because we needed some clarification about Jake's overall outcome. If you remember in the beginning, Dr. Oskouei told us that Jake would be able to do anything he wanted to do after his bone healed. Well, this might not be the case any longer. Dr. Oskouei admitted that he lost sleep over Jake's case worrying about getting the cadaver bone to fit without ruining his growth plates. He was able to complete the surgery successfully, but Jake's left leg will never be as strong as his right. And, we don't actually know what Jake will be able to do with his left leg until we get further into his recovery. Once we can see how well his bone grows into the cadaver bone we'll get a better idea. Our next appointment for x-rays will be on 5/8/13. Please pray that Jake's leg heals properly.
I found your story on facebook and even though our situations are a little different the emotions of the family are the same. My daughter too, was has Ewings Sarcoma in her right tibia she is now 20. She had her a knee replacement and half her tibia removed last September. She is finished with treatments and is now cancer free. Looking at your little boys leg reminded me so much of my daughters picture but little lower cut on the bottom, higher up on the knee. Still, all of this as a mom as not sinked in yet, I still just cry over this and still cannot believe we went thru this. But we are a different family altogether, God has brought us so much closer and we appreciate life so much more. We look at it "one day at a time" which is what I think God wants us to do anyway, live life one day at a time. I'll be following your journey and pray for that little guy and you as Mom. It just breaks your heart to know end. One day, One treatment at a time you guys will get through this.
ReplyDeleteI myself had this form of cancer. Although mine was in my left shoulder and humerus. My upper arm is made of metal and my humerus is cadaver. I have no use of my arm. It's hard for me to accept. Your child is amazing! The fact that he continues on is an amazing thing. This cancer is so rare. I got it when I was 22! It's usually in teens. This goes to show that your son is a survivor! He will be fine, he might not be an athlete now, but he will be an inspiration and do greater things! I wish you the best of luck!
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